Jackie Blue: Detroit Band Raises Awareness of Hypothalamic Hamartoma Disorder by Holding Benefit Show for Three Year Old Austyn Chalifour
Jackie Blue is bringing together musicians and the community to raise funds for three year old Austyn Chalifour in metro-Detroit. "Austyn has been diagnosed with a rare brain tumor called Hypothalamic Hamartoma and we need to raise money for his much needed surgery," says Carrie Firth, lead singer of Detroit based rock band Jackie Blue.
(PRWEB) May 19, 2005 -- Austyn Chalifour. This full of life three year old is
in need of major brain surgery. Hypothalamic Hamartoma (HH). A big name for a
simple condition: A benign tumor is intertwined with Austyn's hypothalamus
(brain area that controls breathing and other basic body functions) and his
optic nerve.
It's the surgery that's the problem. How do you remove the
tumor without killing or blinding Austyn?
According to experts at both
the Cleveland Clinic and the Hypothalamic Hamartoma Support Organization,
without the surgery Austyn faces Gelastic (laughing) seizures, sometimes
tonic-clonic and drop seizures, "hypothalamic rage" behavioral problems, and
frequently, precocious (early) puberty. Some people with HH are also affected by
Pallister-Hall syndrome, an extremely rare genetic disorder.
Carrie
Firth, lead singer of Detroit based rock band Jackie Blue, regularly works with
children who experience seizures as a regular part of their lives. Firth says
"We're bringing together musicians and the community to give Austyn the money so
that he can have his needed surgery and we hope that you'll join us for this
great show."
The Austyn Chalifour Benefit Show
7:00pm, Thursday, May
19, 2005
Token Lounge, 28939 Joy Road, Westland, Michigan
Performances by:
Jackie Blue, Zuby, DJ Litmus, Wisteria, Bullets for Breakfast and DJ
Floss
Additional information: www.JackieBlue.com
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Source : http://www.prweb.com/releases/2005/5/prweb242000.htm